We are John, Carolyn, Leksi, Johnny and twins Brooklynn and Bo.

In December 2011, Bo was diagnosed with IPEX Syndrome, a very rare genetic condition. He is currently in need of a bone marrow transplant.

On this blog, we will share our journey. Thank you for following along.

7 responses

  1. Having followed Cooper and his plight, I now know how difficult things could possibly be for other Ipex Syndrome patients. My first wish is for Bo to be healed. I’ll definitely be praying for him and your entire family! God bless Bo and any other Ipex sufferers.

  2. You are in our thoughts and prayers. My son is an IPEX survivor. He is 2 1/2 years out from his second bone marrow transplant and is doing great. My prayers are that Bo has the same outcome.

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