Angry,confused and very sad!

In September I had a gentleman contact me about Bo. His name was David, his grandson Cooper was fighting his ass off because he has IPEX.. He is a very very sick baby he was Born in July and been in the hospital ever since! 15 days ago he started the process for transplant and yesterday he lost his fight! He passed away at 8:30 yesterday morning!! I am so sad for this family and I can’t even begin to imagine how they are feeling! I am so angry that this existed and his older Brother will never know how much of a fighter this little boy was!! It makes me sad that he never got to go home and his little body hurt everyday! I have never met Coopers mom and dad but, I want them to know how amazing I think that little boy was, how he fought his ass off until his little body couldn’t take any more! I am so very sorry for their loss my heart is breaking for them! Please please keep them in your thoughts tonight, and all of the families who are going to sleep with out their babies tonight!! Ugh this weekend sucked!!!

C

5 responses

  1. I was so sad and shocked to see the post about cooper. I had just seen the one the night before and have no idea what went wrong in those 12 hours. I have been praying for that sweet baby and his family for months. I have a child with Cystic Fibrosis, thought that was bad, can’t even imagine what they have been going through. We had a rough start when she was born and spent a decent amount of time in the hospital to start, but have been “relatively” healthy since then. Read your post about your day that you wrote a few months ago. I know enough about treatments to shake my head in amazement. I pray for your strength, physically and emotionally. I believe we are never dealt more in live than we can handle with God’s help, but I’m sure you agree when I say, sometimes I wonder is it really necessary to see how much that is?? I would love to do all I can to help spread the word of bone marrow registry, I pray that there will be a match for precious Bo and that this will provide some much needed healing to his body.

  2. Cooper has brought me to your page My prayers will be strong for you and your family now Mr. Super Bo because I know this is what Cooper wanted….his spirit was strong and lives on…..may The Lord watch over you always Mr. Bo. And give you comfort and peace in your life. Much love.

  3. To the Macans & SuperBo! I was just informed of your situation by David, Grampa to sweet baby Cooper. I was shocked to learn of his passing, had always held out hope that the transplant would work for him. So very sad. But I am now going to try my best to follow your family and Bo! My prayers will be heading your way daily! It is the very least I can do for these little darlings! I hope I will receive your posts on my facebook page as did Coopers. I have very little experience with facebook and posting, I hope I’ve signed up correctly to both send and receive! God Bless all of you!

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